The couple met in 2007 — a moment Bruce recalled to People, saying, “I was already in love with her.” They fell in love even more and got married in 2009. Bruce and Emma had their first child, Mabel Ray Willis, three years later. Then, in 2014, they announced the birth of their second daughter, Evelyn Penn Willis. But in 2022, their perfect family was dealt a devastating blow. In 2022, Bruce was diagnosed with aphasia and, a year later, frontotemporal dementia. This changed Emma’s life forever. She became a full-time carer and campaigner for people with dementia.

But Emma does not think their story is over. Instead, she is trying to stay positive. On her and Bruce’s 15th wedding anniversary, Emma posted on Instagram, writing, “I can be sad or I can celebrate. This is what I call the ‘remarkable reframe.’ What I know is there is so much to celebrate.” Her positive outlook is helping her deal with the sad events in her marriage.

Bruce Willis decided to retire when his colleagues noticed signs of memory loss. This even led his director, Mike Burns, to limit Bruce’s lines in one of his last films. His behavior change was at the same time as he found out that he was ill. In March 2022, Bruce’s family released a joint statement announcing that he was diagnosed with aphasia, a language impairment disorder that hinders speech.

In February 2023, almost a year after Bruce Willis’s aphasia diagnosis, Emma Hemming Willis, along with the rest of the Willis-Moore family, revealed on Instagram that “The Sixth Sense” actor had been diagnosed with frontotemporal dementia (FTD). In this condition, parts of the brain’s frontal and/or temporal lobes are affected (via The Association for Frontotemporal Degeneration).

This second diagnosis was unfortunate for Emma and her family, but she tried hard to deal with it. She wrote on Instagram that while she used to love her wedding anniversary, it now makes her feel sad and heartbroken.

She also said she feels guilty because she is her husband’s carer. In an article for Maria Shriver’s Sunday Paper, she wrote that she knows many people who are struggling and don’t have the same resources as her family.

How do you tell your children that their dad has an incurable disease? It’s a tricky thing to think about. For Emma Heming Willis, it was a difficult situation. She has gently explained to her young daughters, Mabel and Evelyn, that their father has an advanced disease that cannot be cured, but she doesn’t talk to them about how it will end his life. “They know that Daddy’s not going to get better,” she said.

Since Gene Hackman died, his daughter Emma Heming Willis has been asking people to understand how hard it is to look after someone full-time. Hackman’s wife, Betsy Arakawa, looked after him when he was diagnosed with Alzheimer’s disease. Arakawa died suddenly from hantavirus in late February 2025, just a week before Hackman died from heart disease.

After her message about Hackman, Emma wrote about supporting caregivers, saying, “Caregiving takes a village, yet most are doing it alone. And it’s not sustainable.” She encouraged her audience to check on the caregivers in their lives and support them in their essential work.